在Yahoo group看到一个家长的生物疗法7年的总结.觉得不错.转过来了. Post By：2010/5/7 下午 08:46:59 Post IP：155.69.192.7

I just realized that this week is our sons biomedical birthday!! we have been now doing this for 7 years for our family. this journey has for SURE been a marathon, giving us SOME immediate results, and some we had to work hard for and be patient as well. we found recovery for our son in these years of doing things, and we could not have gotten here with out some very important people that we would like to thankGOD- he told us our son would find healing but it would not be over night Dr Baptist- he has been our DAN from the beggining and has write MANY letters to schools, other dr's, the state to help us fight to have things covered that would not other wise been done, or schools for cooperation in HELPING us instead of beign a road block. he helped us get hot lunch program that was safe for our NT but high allergy girl as well. he helped give us LOW cost medical help, testing, and HBOT along the years and we have ALWAYS been happy to pass his name on to other OTHER DANS, we have seen about 4-5 other DANS many who were NO help, or who had no clue what they were doing, and helped us greatly appreciate the blesseing we had in Dr Baptist. SUPPORT GROUPSGFCFkids, MB12valtrex group, Chelatingkid2 group, LDN ect over the years, MANY MANY groups. gfcfkids and chelatingkids2 being our main support we COULD NOT have done it with out you, at low times you were my encouragement, at times of crisis you gave back in helping to find answers, you have given me purpse over the years to also give back to others as I have been given. I have learned so much from you on what is working for others,. helping to find subsets of kids and what they are helped with, this has by no mean been just a diet support group. you helped push our limits with stepping outside of JUST what was presented through our Dr. we would never have found LDN with out you which was life alterning for our son and we did diet with JUST you BEFORE getting a DAN. you helped weed out what things were safe and not safe over the years so I DIDN'T have to over extend myself allowing me to be a mom as well as an advocate. you were my support when marriage was rocky, when we needed guidence and support with school issues, like I said you have all gone BEYOND diet! things we have learned along the way, things we have used along the way, and issues we have over come with these things. hope this helps others BEFORE AUTISMloved people,smiledplayed with toyswas meeting mile stones *all but crawling (was late walked and crawled on the same day-walked early, talked early, crawled with one hand fisted)could operated teh VCR on his own,put 2 qand 3 words together to make sentenceswas 6 months advancedloved other kidsparaelle playedengadgedcourious about how things worked and tickeling, cause and effect ecteasy and happy babysleep through the night at 2 weeks old OUR SON USED TO (in autism world)spin a phone all dayconstanly said laddle laddle laddlenot playing with any of his toysnever look uphad no lang but 3 words to remain *(dadda, papa, and bob)regressed from his 6 month vacciantions and 12 month vaccinationshad no eye contacttwitteled his fingers infront of his facewalked on his toesflappedhad RSV for 8 monthsALWAYS sickhad 8 ear infeactions8 rounds of antibioticsconstant diareah upto 12 runs a day of diapers with JUST diareahhad to sleep sitting up as he was going to stop breathing in his sleepstaired at in public from his terrible breathingin the hospital or dr's office every 2-3 days for 8 montsh straight till we found biomeidcalsmeared fecal mattercouldn't fall asleepwould wake up every couple hourswould wake up earlywould cut himself to watch himself bleedhad no sence of pain or pressureNEEDED pressurehad to be squishedmelt downsbashed his own head when upsetcouldn't hear nohad NO appite to drive him to ask for foodcouldn't make simple requestslost his ability to walk after shotsdrooled all dayhad 80-100 plus seizers a dayONLY ate gram and animal crackers, drank a gallon of milk a daybefore we ended up with JUST crackers and milk he would sort his mixed veggitables and eat them in a certain order, always the same one.couldn't eat or touch anything wet with out gaggingopened and closed doors all dayflicked lights on and offwaved things in front of his eyes and on the sides of his headalways broken outbottom rawunexplained feversMANY ALLERGIES and reactions to foodscouldn't nurse, choked nursing dispite MANY speicalist helpingcouldn't grow or gain weightcouldn't take the noise of the vaccumehad to put all my purfumes and lotions in order and line up daily, if you moved them he went into melt downthe order would be different dailyno imaginary playWHEN using his 3 words they would be like dadadadadadadadadad papapapapapappap, bob bob bob bob not even able to use them in solo formslaps his own faceflicks fingersdrills toungeantibiotics won't fix sicknessoff 3-10 days and infections come right backemotionally unstable and explosivehard to manange childhairy backsweatycan't suck through a straw or bottlebolts when called not for fun just uncompliantvery strong first morning urinewon't and can't pointwhen picked up won't cling to you, just dead weightspeech therapy did NO good, therapist ready to quitwhen placed with other children at church he would just sit in the corner and bank sticks humming and laddleing to himself when he DID gain lang it was all only repeating movie lineswould do puzzles beyond his age UPSIDE down with the brown showing and put them together JUST with dietrecorded changes EYE CONTACT BACKNO MORE DROOLING OR SEIZERSNO MORE HEAD BANGINGALL SENSORY ISSUES GONE (CAN TOUCH AND EAT WET THINGS)EMOTIONALLY STABLESLEEPING THROUGH THE NIGHT AGAINtrying to communicateno more need to bang cupboards or drawers or line things upNO MORE EAR INFECTIONSpleasent personality backlikes to interact with people and kidsenjoys pleasure like toys, tickles, chase, games, ectnotices tv and people againtaking new foods, meats, veggies, fruits, not obsessed with cruntchy and milkdieareh rash betterdoing show and tell with thingsemotional responces back like fear, (covering eyes when scared with movies)giggleing when things are funny or funreadingshows reaction to pain and pressure nowkissing and hugging and seeking them out EFAs helped with pretend playLDN was HUGE for us, helped his immune system, so he wasn't getting sick all the time, lost 22 allergies (both IGE and IGG with it) helped sleep, mood, BURST in lang, social skills increase and lang increase. if I had to pick 3 BIG things this would be in my tp 3 pick. it also allowed us after years of treatment to FINALLY kick yeast with bring the immune system into balence, BUT our best doseing was 1 line to 2 linds NOT the 5 lines like most are using.DMG was huge for us in the begginning. the first time we took it we had 4 new words in 4 hours, and 8 words in 8 hours. we were in disbelief after first dose and gave him a 2 week break. 2nd dose he said love ya mama....with in 4 hours of that dose. it was life changing for us.B12 ann folic acid (folapro form) were big ones for us when COUPLED with the LDN- HUGE increase in functionability, normalcy, social and lang. this pushed us over our big hump to loose his dx.antibiotics and antifungals- we saw the damage that antibiotics did in the beggining and for years thought of these as evil for a while. BUT fluconizole over the years was of great help to our son,. and with PANDAS being one of his remaining issues, antibiotics have been part of our life. as needed for flares after OLE stopped working on the 3rd flare. azithromyacin was a GOD sent durring those times and then he became resistant that and clymindamyacine worked, then stopped so we had to go prophatic on antibiotics. (lyme treatment based) so athyromyacin every 10th day, minocycline every other, clymindamyacine every day (was 2 times a day for a month at first) and fluconizole daily. as long as we don't run out we keep flares at bay.we have done things like mulit B's as needed, cal, mag, vit C *never found one we tolerated, with out any big wows but they were needed via testing.selenium helped us detox and mop up things like mercuryBiotin helped with yeast issues and healthy hair and nails,Carnintine- and acytl Carnintine (may want to check my spelling on that NOT in my giftings cluster) made HUGE difference in weight gain....and muscle tonesecretin would be in my big tp 3 as well. it was a night and day different child on it, calm, got full (which NEVER hardly ever happens) stool changes, but remember this was the real stuff from japan. it was only suppose to be needed like every other month and our son required it every 2 weekszinc helped to firm up stoolsyeast aid was amazing for us in the early years by kirkmans working on both yeast and bacteria at one timeenzymes *(we used houston trienzmes and then the bundle before that was avaliable) as well as pancreatic enzymes creon, secretin, ultrase ect. made a difference in stools but only short term and needed VERY high doses.probiotics- helped stools, sleep and moodmelitonin- used for almost 5 years, slow release and regular, no longer needed. (also loved melitonin plus)vit D- didn't see much with this one also dropped as it got high and toxin and didn't seem to filter for himl-glutamine was a huge part of his gut healing with sealing wholes in his intestines.taurine was huge for keeping stools dark and digested as well as for keeping up seizer threshold, for years if we missed a dose seizer activity would be more presentcaprilic acid- helped in fighting yeast and bacteria for himamino acid complex- helped with amino acids that were low and worked as a fill in for his lack of enzymes to break down protiens and fatsHBOT- saw HUMOR erupt. would love to do more of this one, we saw MASSIVE die off of yeast in stool on this one, it helped his PANDAS as well *we coupled this with antibiotics at the same time as well as antifungals, BUT the die of INCREASE was amazing, with in hours he was telling jokes, lang increase, social increase, looked better, sleep better, got full, stools looked great.....this would be another top one. we hope along the way to either buy one, or do some full double sets for a month with this.DMSA- we did oral with this and DID see some amazing lead dumps with it, it's something we are going to again focus more on, but saw as our nutrition was set in place via suppliments, and diet coupled with enzymes that we ALSO started to dump great amounts of thingsvit A-- we did the vit A protical and saw a HUGE jump in lang and broke out in measels for weeks confirmed by several drs.parasite treatment- found after drinking well water ONE time he got parasites, he has remained on PENTA water and this has not only served him well but when going OFF of it we see negitive things pop back up. we have been part of several medical studies as well, the vit A protical study and LDN study through Dr McCandless getting great results through both over the years we have done TONS of testing to be part of our guiding forceOATS, Comprehensive stool testing, allergy testing, yearly IGG testing to guide our diet, removal, and rotation of foods, amino acid testing, essential fatty acid testing, blood testing, titers testing, comp blod testing, comprehnsive immune panels, upper and lower GI scopeing, mito testing, celiac testing, genetic testing, cycticfibrosis testing, growth hormon testing, bone x rays, multipule EEGS, sleep studies, hormon testing, ATEC testing, mainstream testing *(which has fallen SO short, bimedical testing found things YEARS before mainstream which went out to prove our biomedical testing all wrong only to end up in the end backing everything we found just being 4 years behind in finding the same things) samples of intestines taken as well. we have worked with 5-6 DAN dr's over the years and always sticking with our best and golden find in Jeremy Baptist who we owe SO much of levi's recovery to in both helping guide our testing and where to put our money and blessing us with working with us to keep things affordable as well. he was been worth more then his weight in Gold of a find. we are still in process with lyme testing, looking to do a swollow cam to see how things are going gut wise, readying for chelation and addressing more on the biofilm front to rid of PANDAS all together. again looking to do more HBOT as well. we have also banked stem cells from our youngest incase anything comes down the road to help he or she as they have similar medical issues that we are trying to restore in their body. things that went wrong along the waywe had a scope that set us back 2 years in progress. they did nitrous oxide dispite us telling they could not with our son haveing an MTHFR mutation that left him unable to have it and depleteing the body of b12 rapidly. it crashed his co2 levels leaving some of the lowest level this dr had ever seen when he came out,. we also believe he was exposed to strep durring this proced